サイモンとマルティナのインスタグラム(eatyourkimchi) - 3月1日 04時20分

February 28 is #rarediseaseday so here’s a post coming at ya! 👩🏻‍🦳 Hi, I’m Martina @king.kogi 👑🐷 Some days I feel great, I love adventures, food, doodling, making music. And some days it’s just “wHy mE?!” And I’m barfing/pooping out my guts and it’s a big ol’ sad pain cry day 😒 Most of you know that I was born with hEDS (hypermobile Ehlers Danlos Syndrome) It is more than just being “flexible or stretchy”. The whole body is built using collagen. That includes all of your organs, muscles and tendons, cartilage and skin. When you’re born with hEDS, your body is built with defective collagen, it doesn’t work as it should 🧐 Imagine if you built a house with play-dough rather than steel or brick. It might look like a normal house, but there are a hella problems happening all over the place for the residents of the play dough house 😂 I’ve dislocated shoulders, knees, jaws. I deal with daily subluxations and chronic nerve pain 🤷🏼‍♀️ This is my normal state of being; you can imagine what it is doing to the chemicals in my brain 🧠 🤕 But you know what? I’ve learned to push on and I’ve had an amazing life so far! 🤩 Yes, there are 💯 limits, and I’ve failed to understand them many times. I’ve suffered for those choices. But I’m getting much better at understanding my limits. For those of you struggling with any illness: learn how to cope with what each day gives you. That’s my #buildaladder method. Enjoy adventure with proper recovery and rest. Cuddle with an animal or a comfort toy. Take meds if needed. Do physio (even at home) and see counsellors. Wear those shorts EVEN IF your legs look bruised or your eczema is flaring because... *snaps fingers in the air* that’s the real you. 🥊The FIGHTER who is kicking ass with what you’ve been dealt. And you don’t need ANYONE in your life that judges YOU especially based on your outside appearance. You don’t need the SHALLOW FOOL who judges you for using a mobility aid or a medical tool. They’re not going to the countless doctor’s appointments, getting pokes & pricks of needles, MRIs, the surgeries. YOU ARE 💪🏻 Thanks to this amazing community for showing ME how to be strong no matter what life dishes out.

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