サイモンとマルティナさんのインスタグラム写真 - (サイモンとマルティナInstagram)「Martina here: it has been a rough few months now, not gonna lie. I’ve been forced to slow down to deal with these new #Dysautonomia symptoms on top of my hEDS and it is frustrating to WANT to work and achieve particular goals... but you just can’t, because you’ll make your health worse 🐌 Despite me trying my hardest to be healthy: weekly physio + the daily exercises/nighttime exercise, meds, a million vitamins, multiple health diaries, weather tracking, pre-planning, new treatments—the reality is...I just happened to be given the genetic lottery hand of being born with Ehlers-Danlos 🎲🤷🏼‍♀️ So what can I do about it? Well I’m gonna keep doing the things I love while trying to understand and accept my new limits. I’m gonna keep laughing and browsing the chronic illness memes because it helps me cope and be positive 🤪 I’m gonna #buildaladder in different ways, if I can’t do all the other things I used to do 🔮 Life hands us sudden changes and we have to learn to adapt or we’ll suffer much more in fighting against it. This incredible community has shown me on many occasions just how incredible and resilient people can be despite what life has handed them. Yes, I absolutely creep on the buildaladder hashtags 😂 and I see all you pushing on despite what life is throwing you. 🙇🏼‍♀️ Thank you for being role models and for showing me new ways to cope and build 💕」2月16日 11時23分