Robin May Flemingのインスタグラム(robinmay) - 3月27日 03時33分
I had a single day's partial respite from my multi-week headache, and then, oh no no no no no no, was plunged right back into the nightmare somewhere in the darkest depths of last night.
I'm calling it a "headache" because if it is, in fact, a migraine, it's not following any of its usual patterns, not even the most unusual ones.
As I type this, I'm trying to breathe through the stress of being a burden to my husband; I'm trying to breathe through the stress of dreams that I can't turn into goals; I'm trying to breathe through the stress of not being able to do simple tasks. Anything requiring more than the slightest exertion—any cough, sneeze, laugh, or cry—sends pain crashing through my temples, the sort that makes me think I'm about to leave this earth once and for all. The sort that makes me clutch my head to hold my brain in.
"Don't stress. You'll make it worse!"
Forgive my bluntness, but I have no energy for softening my blows: Please, just shut up.
"You're not a burden. Don't say that."
I literally am.
"Have you tried _________________?"
There is nothing you can tell me about headaches or migraine that I do not already know. Seriously. Even if you or your sister or your friend-of-a-friend's cousin has the EXACT SAME THING/is a doctor/acupuncturist/naturopath/chiropractor/crystal healer/knows someone who knows someone who knows someone who saw a movie once about someone who went on a juice fast and has never suffered again.
No one, in 30+ years, has enlightened me on my condition. No DM from a kind stranger. No phone call from a well-meaning family member. No one. It doesn't feel good to say that, but it's the truth.
Not a day goes by that I don't seek answers. Not a day goes by that I'm not hopeful. Not a day goes by that I'm not disappointed.
P.S. I saw that movie, too.
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xtinechristine
Hi Robin. I’ve been thinking about this post since you wrote it hours ago, so I’m going to risk telling you something you don’t want to hear, or maybe have heard a hundred times already. But have you heard of the meditation and healing work being done by Dr. Joe Dispenza? It’s just a method of meditating that’s scientifically based in quantum physics. Applying what he teaches is helping me get my life back after cancer, stress and toxic pharmaceuticals have left me with chronic exhaustion and pain for 15 years. Hay House started a free video series by Dr. Joe today, by coincidence. (I’m not proselytizing, it’s just a suggestion. 😊) There are also many incredible stories on YouTube from people with hopeless health conditions who have fully recovered using the techniques he teaches. People who had tried everything else. If there’s any chance this could help you, I didn’t feel right keeping it to myself 😊 Sending you peace, and healing, and a better day tomorrow 🙏🏻🦋❤️
angelsn0w
Big ((((((((HUGS)))))))) my IG friend. I understand what you are going through believe it or not. I endured a 2month “headache” where I lost a good part of my vision and experienced crippling pain where all I could do was cry silent tears in a dark quiet room. I was actually hoping the doctors would have found a brain tumor which would be the answer to so many things. But odd to say, they didn’t. I was stuck in the abyss of unknowns. I still do not know the cause or why so severe. Each one is fairly unique with the onset and symptoms. So from someone who understands, I will continue to pray that you will be blessed with extended relief from these “headaches”. ❤️☺️❤️❤️
beccalls
@robinmay I admire you for even being able to post that message with a migraine as I find it an impossible feat to even open my eyes. I also admire you for not moaning as much as i did to my friend's mum's uncle who is the step brother to a three twice removed cousin of my aunty's (whos not really a proper aunty but just an old friend of your mum's who lives 5 doors along the road and has always bought you a birthday present so you love her more than a proper aunty) god daughter's sister whose next door neighbour i work with when i stapled my own finger at work 😂😂 ❤️❤️ xx
valeriehopeful
Sometimes life is just total shit. Period. I've always stayed hopeful, that things will get better, my health will get better, I'll get to do all the things I dream of doing. But some days it feels like hope is a cliff you're hanging on to by a finger and you're just not sure if you'll get your grip again to pull yourself back up. Chronic pain and illness f*cking sucks. It's nice to not feel alone in this feeling. But I'm so very sorry you're going through this. ❤
tamrynn
I’m sorry for your struggle. I understand your frustration, well I understand that type of frustration, beyond frustration. I hope you or your doctors find answers for your sake. It’s okay to be a burden. And it’s okay to need - need help, love, silence, patience, to not know what you need but need it anyways. Good luck in getting what you need and finding peace with needing it, enough to be able to bare your day.
jaypang529
A mentor once told told me "to hear of pain is disbelief. To feel pain is reality". Please know there are so many people rooting for you while you bury yourself in the dark and loneliness and guilt. You are so much more than medical labels and unfulfilled goals. I see you. I witness your pain. You are so loved ❤️
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