リリ・ヨハンソンさんのインスタグラム写真 - (リリ・ヨハンソンInstagram)「Today is my birthday.⁣ ⁣ It used to be a happy day. I used to be happy, active, hard working, excited about my life and future. I took what many take for granted —being free of pain, and living life vertically. ⁣ ⁣ I’ve been bedridden in severe pain since April 2022, when I was given a botched spinal tap giving me a chronic CSF leak. What followed was even more horror as they accidentally injected blood into my spinal canal in an attempt to stop the leak with a blood patch. They doctors that did this to me then proceeded to ridicule me and call my symptoms (they created) psychosomatic. ⁣ ⁣ The blood inside my spinal canal gave me an incurable and progressive disease called adheasive arachnoiditis where the spinal nerves get so inflamed they start sticking together, forming like a tumor inside the spine that will just keep growing. Because the cauda equina nerves are very sensitive, this causes horrific levels of pain as well as seriously affect my legs and feet making it hard to walk and difficult to sit or lay on my back. ⁣ ⁣ For 1.5 years I’ve felt like I’m being trapped and tortured, like someone imposing physical abuse on me 24/7. I never get a break, never a moment of comfort. Not living, merely trying to survive. ⁣ ⁣ I have been very close to ending my life, and that is absolutely not because I want to die. It’s simply because the pain have been so unbearable. Anyone would feel the same in my situation, it’s just not endurable. ⁣ ⁣ I deserve to live and have quality of life, just like we all do. And I owe it to myself to keep up this fight. So despite the pain, anxiety, ptsd and depression, I know that I must continue to advocate for myself, as the fundraiser is the only thing that can help me get proper medical treatment. ⁣ ⁣ 𝐈 𝐰𝐚𝐧𝐭 𝐭𝐨 𝐬𝐡𝐨𝐮𝐭 𝐥𝐨𝐮𝐝 𝐚𝐧𝐝 𝐜𝐥𝐞𝐚𝐫 how incredibly grateful I am for all of you fighting alongside me and helping me get through this! Your support means the world to me, and I hope you know that I will never forget it.⁣ ⁣ May this is be the year my healing happens and I’m able to get back to the best version of me thats possible.⁣ ⁣ Swipe to see a little lilibean enjoying life🌻」9月11日 18時20分