ジェシカ・スタインさんのインスタグラム写真 - (ジェシカ・スタインInstagram)「Thank you. From Rui and I, thank you. Thank you to every single person who has reached out. Every single person who has supported us. Each comment and email will be read and replied to, and we have received so so much valuable advice and connections it is completely overwhelming. My symptoms get worse with sobbing so I’ve been a swollen red puffer fish, feeling more than I’ve let myself for so long. The last few years I’ve been focusing on staying alive and trying to get through it first. I was horrific for the initial 4-6 months after the lumbar puncture, like the walking dead. Everyone told me it wasn’t real and I was choosing to be a bad mum. I went from being a completely functional ass kicker to being incapacitated. So I took more medication and told myself it’s all in my head (which it never was) and pushed through just to be a part of Ru’s life; and pretending to be capable. Eventually I could go for a swim in the ocean with someone there, and a few play dates with friends who came over, take Ru for a walk etc. But then the reduced venous return symptoms started (6 months post LP) and I’ve been gradually getting worse ever since. The past 6 months the worse ever. Continued in comments」6月23日 9時23分