ジェシカ・スタインさんのインスタグラム写真 - (ジェシカ・スタインInstagram)「Hi, I’m Jess’s cousin Sara. Jess and Rumi need help. Jess and Rumi are both suffering from multiple complications of a connective tissue disorder they both share. Their family shares features of Ehlers Danlos Syndrome, Marfan Syndrome and Brittle bone. After years of trying and failing to navigate the rigid health care system, they are having to turn to the community to help find them appropriate health care. Jess has also suffered enormous gaslighting by the health system for many years while trying to advocate for Rumi and herself. She was repeatedly told that the symptoms she was explaining were ‘physiologically impossible to survive’ and that "she wanted to have a sick child in hospital". Jess had a traumatic injury happen while in hospital a few years ago, and was labelled hysteric. Instead of ordering a CT to clear an aortic dissection, her neurologist misdiagnosed her with conversion disorder, saying that she wasn’t coping with having a sick child. Jess was left alone, and in agony trying to get help in a system built against her. She now has major vascular congestion symptoms that leave her unable to lay down, with tearing chest pain and spitting up blood. She’s too tired to fight anymore. If anyone can help please reach out to Jess’s email at jessicamaystein@gmail.com, or go to the link in her bio for more information. https://gofund.me/b3472a53」6月19日 21時13分