マーク・フォイアスタインのインスタグラム(markfeuerstein) - 10月20日 06時12分
Sign and share this petition!
I’m proud to share this beautiful video from the fierce group of Mamas
@HopeForMarian Foundation whose kids live with the rare disease
Niemann-Pick Type C (NPC).
Their life-saving medicine is in jeopardy of being taken away.
The @SaveOurMedicine campaign is advocating for approval
of their treatments and continued access through compassionate use.
Please be a hero and sign and share the petition at SaveOurMedicine.org.
#SaveOurMedicine
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2021/10/20