ペトラ・ネムコバさんのインスタグラム写真 - (ペトラ・ネムコバInstagram)「When we were able to bring Bodhi home from NICU we felt so much gratitude for everyone who had helped Bodhi to be safe, gratitude that he got the needed care, gratitude to the universe for guidance, strength and love. I can’t imagine not being able to have a cure for Bodhi. Can you imagine not having cure for your baby? I have learned about sweet Lucas @savingLucas story and the rare Genetic condition 🧬 #NKH which he has and other genetic conditions. NKH is a genetic condition that can cause global delays, seizures, and even death. Many babies do not live past the NICU, but those that do can struggle with CVI blindness, speech, motor function, and autism. Gene therapy research and treatment has the potential to cure all brain disorders like #NKH and right now they are at a tipping point to have a cure for @savinglucas and other children. All what is standing in between having the cure is funding. Please take a moment to help Lucas and there are many ways to do it so he & other children can recover and no more babies will die. Thank you 🙏🙏🙏 #Repost @savinglucas ・・・ At a time when we are all experiencing the pandemic, generosity is what brings people of all races, faiths, and political views together across the globe. Generosity gives everyone the power to make a positive change in the lives of others. We are running this fundraiser through Facebook since they are matching nonprofits efforts up to 7 million dollars this year. (Link in @savinglucas bio) Thank you for considering Lucas this #GivingTuesday. He is our a gift from God and we are blessed to be a part of his story. Join us as together we defeat the odds and fund the research needed for the cure.  Lucas is medically diagnosed with a rare genetic condition called NKH (Nonketotic Hyperglycinemia) a condition that currently has no cure. He is the strongest 2 year old boy you will ever meet! He doesn’t have 100% head control. He does not currently sit on his own, walk or talk—yet! But he will one day soon! We are believing and praying for his manifested miracle every day! We will do whatever it takes to help him. 🤜🤛 God will make a way when there is no way.」11月30日 23時34分