サラ・ライトのインスタグラム(swrightolsen) - 3月28日 03時23分

Teresa and I were both moved beyond words by today's piece. "Finding Hope in the Hopelessness" by Peta Murchinson. By now you have Probably seen @テリーサ・パーマー 's post about @bounce4batten if not check it out and read this article by this incredibly inspiring family and take some time out to raise awareness for this "rare neurodegenerative genetic condition that is debilitating and sadly fatal that affects mostly children and there is still no known cure." March 31st is National Batten Awareness day!!! Bounce4batten and have your kids bounce, your friends, your pets, and your stuffed animals take a pic and post it on social media.. not only to get this message out but to spread joy and show those families that they are not alone!! Make sure and hastage #bounce4batten and #Onlyaboutchildren #weseeyou
#wesupportyou @bounce4batten ?????

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