サイモンとマルティナさんのインスタグラム写真 - (サイモンとマルティナInstagram)「I’ve been spending the past year doing my best to work on my wellbeing. I’ve been weightlifting, started running, trying different kinds of meditation and mindfulness practices, been seeing a counselor regularly and trying different forms of talk therapy, even going to couple’s counseling, reaching out to friends and rekindling past friendships I’ve neglected, and reading many books about psychology and relationships. I feel that I’ve improved a lot this past year, and that I’m the best version of myself that I’ve ever been. But there are days like today - many days - when I still feel hopeless, where I feel like there’s nothing I can do. Watching how Martina’s EDS is wearing away at her both physically and spiritually has been deeply dispiriting, and has had a big impact on our relationship, which in turn has a deep impact on my own wellbeing - for which we both feel guilty. I’m trying what I can to stay afloat, but I feel overwhelmed. I don’t know what more I can do. And I feel alone in this. I don’t know what community I can turn to. I love talking to the Rainbow Ladder Support Team on Discord, who have been a great support to me and such a source of joy that I get a bit too sappy in thanking them sometimes. But I haven’t been able to open up about this yet, to them, to you, until now. I need advice. If you have any suggestions of communities I can join, spouses of people with EDS or other Chronic Illnesses that I can talk to, please let me know. I’m sorry for following up Martina’s difficult post with my own, but I don’t know where else I can turn to.」5月7日 14時07分