アマンダ・サイフリッドのインスタグラム(mingey) - 10月24日 01時27分


#wcw : @sophiemayanne who shines her light on other glorious beings like @tofacetheworld ・・・#repost
#behindthescars "My name is Tessa. I was born with Sturge Weber Syndrome, with a port wine birthmark covering the whole of my face.
When I was just born the doctors advised my parents to start with laser treatment. The earlier, the better, they were told – as the skin would react better. And it did, in the beginning. But, when I was two years old, the laser treatment went wrong. The hospital had a new laser machine that turned out to be calibrated 4 times higher than it should have been. This burnt my birthmark, resulting in the scars on my birthmark. From then onwards, my parents decided against laser treatment.
When I was 6, we also found out that my eye was affected by glaucoma, as a result of the Sturge Weber Syndrome. We focused more on my sight, to help keep that steady instead of the birthmark treatment.
I grew up in Amsterdam. My childhood was, besides medical treatment, very relaxed without a lot of trouble. My birthmark was not an issue, and my parents coped really well with it. I was never bullied in school, and, besides some issues with my sight, I could do everything and I was always free to choose what made me happy.

I never covered my birthmark with makeup. I once tried it, but I didn’t recognise myself in the mirror. For me, my sight is so much more important – to be able to see the world. I know I get looks and stares, but I have never really felt bad about that.
The scars on my birthmark fall away in the birthmark. They look like they are part of the birthmark, and that’s why some think I am burnt. Sometimes I think my birthmark would have looked a lot smoother (as in flatter) without the scars, and I wish my parents did not go through the terrible experience of having their child burnt by the same doctors who told them to start the treatment. But, the scars are a part of me and I would not want them gone.
I have a full life, many friends, I love studying, I have amazing parents, a home. Of course, a birthmark challenges certain aspects of my life, but it brings a lot of beautiful things too.” @tofacetheworld
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