スコット・イーストウッドのインスタグラム(scotteastwood) - 6月5日 05時23分


Sanfilippo is a progressive brain disorder in little children, caused by just one missing enzyme… but it’s an important one. Because he doesn’t have this enzyme, toxic storage material is building up in Carter’s brain every second. You wouldn't know it by just looking at him, but this disease will soon begin shutting down critical areas needed to function. As degeneration rapidly progresses, Carter will lose the ability to talk, swallow, walk, he will develop seizures, will suffer severe dementia, and die. They call it a “Childhood Alzheimer’s.” At age 6, Carter is starting to show the signs of the disease. Right now he can still talk, some. He can still run and play with his big sister Sophia. For now, he’s hanging on, but just barely. This campaign for his LIFE is as urgent as it gets. It’s Now or Never for Carter.
If you have a spare minuet,Please check out the link in my bio to help this kid and his family.


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